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All of the
funding sources listed under "How
do we get financial and medical help with our family's special
needs? may help with medical care after a child
goes home from the hospital, although some funding may be
limited to specific services. It will be helpful to
discuss what your baby's medical needs will be at home as
soon as a clear plan is developed, even while your baby is
still hospitalized. While still in the hospital, you
can talk with your baby's doctor, the hospital discharge planner
and the hospital social worker to help you find outside medical
care resources such as Medi-Cal and CCS.
It is
very important for you to have a doctor to take care of your
baby as soon as he or she comes home from the hospital. If
you already have a pediatrician, let the hospital know his
or her name. If you do not have a pediatrician, ask
the hospital doctor(s), social worker, discharge planner or
nurses for names of doctors in the community who are familiar
with your child's diagnosis and who accept the type of medical
insurance that your baby has. If you are in the Medi-Cal program,
Medi-Cal will give you the names of doctors who accept Medi-Cal
in your area. Even if your child does not receive Medi-Cal,
he/she may be eligible for Child Health and Disability Prevention
(CHDP) or CCS. Phone numbers for MediCal, CHDP and CCS
in your county can be found under "How
do we get financial and medical help with our family's special
needs?
Ways To Work With Your Doctor
- Select a doctor with whom you
feel comfortable. You'll be working together to help your
child.
- Be assertive, ask for what
you need; write down your questions as you think of them
and bring them to your child's appointment.
- Give honest and direct answers
and expect the same; have confidence in your own observations
and opinions.
- Don't hesitate to seek a second
opinion if you feel you need more information.
- You may want to bring a friend
or your baby's teacher to help you ask questions and hear
what's being said. Having that person take notes for
you is always helpful.
- Ask for and keep copies
of medical records and reports in a notebook. Parent
record keeping notebooks (called The Family Notebook)
are available through infant programs, your Regional Center
or Warm Line Family Resource Center. Having copies of reports
is especially important since, because of federal health
privacy laws, it can be time consuming for agencies to get
copies from providers. If you already have copies
of reports, you can provide them directly to new providers.
Dental
Health
Dental
health needs are as important as other health needs.
Children have all of their "baby teeth", typically,
by age two. Your child should visit a dentist within
six months of the first tooth erupting, by age one or when
your pediatrician recommends.
Finding
a dentist for your child with special needs can be challenging
because not all dentists feel comfortable working with a child
with special needs. A dentist who does take patients
with special needs may not take your dental insurance.
To find a dentist for your child, ask your pediatrician or
other medical specialist(s) for recommendations. You
can also talk with friends and ask them to recommend their
child's dentist. While WarmLine does not endorse or
recommend providers, we do maintain a list of dentists who
have had experience with children with special needs.
If your child has services through Alta California Regional
Center, you can also ask your service coordinator for names
of dentists who might be available to care for your child. |