All Counties


Where Can I Find Additional Information On A Specific Disability?


Sometimes it is hard to find enough information about a specific diagnosis or special challenge. The following is a list of some of the many groups, information lines, and associations providing information for families and professionals. We have provided a link to the website whenever possible. For organizations that do not have websites, we have provided phone numbers. Some of these organizations offer assistance, newsletters, parent-to-parent support, information and resources. An asterisk (*) after an organization's name indicates that there is a related group or chapter in at least one of the counties served by WarmLine. See "How can I get in touch with other parents?" for some local support groups and organizations. You can get a more complete list by calling the WarmLine or check out the most recent edition of the WarmLine Networker Newsletter. 


“Sp” means that the website is also available in Spanish.

A

Aarskog Syndrome

Acid Maltase Deficiency

Acoustic Neuroma

Adrenal Diseases

AIDS Hot Line...... (800) 342-2437 (El Dorado, Placer, Sacramento Counties: (888) 259-4448

AIDS Network, National Pediatric

Alagille Syndrome

Albinism & Hypopigmentation (Sp)

Alopeia Areata

Alstrom Syndrome

Amputee, American Foundation

Anemia, Aplastic (Sp)

Anemia, Cooley's

Anemia, Fanconi 

Angelman Syndrome (Sp)

Anophthalmia

Anorectal Malformations

Apert Syndrome

Aphasia

Arthritis, Juvenile

Arthrogryposis Multiplex Congenita

Asperger's Syndrome

Asthma & Allergy

AtaxiaAtaxia Telangiectasia

Attention Deficit Disorder


Autism

Auto Immune Related Diseases

B

Batten Disease (Sp)

Bereavement Support


Birth Defects

Blepharophimosis, Ptosis & Epicanthus Inversis

Blind


Blood and Bone Marrow Transplant

Bowel Dysfunction Disorders 

Brain Injury


Brain Tumor
Burns

Phoenix Society for Burn Survivors 



C

Cancer


Carnitine Deficiency

Celiac Disease  (Sp)

Cerebral Palsy Association of Sacramento

Charcot Marie Tooth Syndrome

CHARGE Syndrome

Chronic Pain (Sp)

Chromosome Disorders
There are many types of chromosome disorders.  For more information, please go to the:

Chronic Fatigue Syndrome

Cleft Lip / Palate

Cockayne Syndrome  (Sp)

Coffin-Lowny Syndrome 

Cooley's Anemia (See also Thalassemia)

Cornelia de Lange Syndrome

Craniofacial Disorders


Cri Du Chat Syndrome (5p Society) 

Crohn’s Disease & Colitis

Crouzon's Syndrome

Cyclic Vomiting Syndrome

Cystic Fibrosis

Cystinosis (Sp)

Cystinuria


D-E

Dandy Walker Syndrome

Deaf / Hearing Impairment

Diabetes

Down Syndrome  (Sp)

Dubowitz Syndrome

Dwarfism  (Sp)

Dyslexia


DysautonomiaDystonia

Eagle Barrett Syndrome (Prune Belly Syndrome)

Ectodermal Dysplasia

Ehlers-Danlos Syndrome

Epidermolysis Bullosa, Dystrophic

Epilepsy  (Sp)

Erb’s Palsy

Evans Syndrome



F-G

Facio Scapulo-Humeral Syndrome

Fatty Oxidation Disorder  (Sp)

Fetal Alcohol Syndrome

Fibrodysplasis Ossificans Progressiva (Sp)

Food Allergy  (Sp)

Fragile X  (Sp)

Freeman-Sheldon Syndrome

Galactosemia

Gastroesophageal Reflux (Sp)

Gastrointestinal Disorders


Gaucher DiseaseGenetic Disorders

Glaucoma

Gluten Intolerance

Glycogen Storage Disease

Goldenhar Syndrome

Granulomatous Disease, Chronic

Group B Strep

Growth Disorder


Guillain-Barre Syndrome



H-J

Head Trauma



Heart Disease
Hemiplegia of Children Alternating

Hemophilia

Hemmorhagic Telangiectasia, Hereditary

Hernia, Diaphragmatic

Histiocytosis

HIV & AIDS (See AIDS Network, National Pediatric )

Holoprosencephaly

Hospice

Huntington’s Disease

Hydrocephalus

Hypoparathyroidism

Ichthyosis

Immune Deficiency

Joubert Syndrome



K-L

Kidney


Klinefelter Syndrome  (Sp)

Klippel-Trenaunay Syndrome

Latex Allergy

Laurence-Moon-Bardet-Biedl Syndrome

Learning Disabilities


Leukemia and Lymphoma (Sp)

Leukodystrophy

Limb Disorders


Lissencephaly

Liver Disease

Long QT Syndrome

Lowe Syndrome

Lung Disease


Lupus 

Lyme Disease

Lymphatic Malformations

Lymphedema



M

Malignant Hyperthermia 

Marfan Syndrome

McCune-Albright Syndrome

Mental Health


Mental Retardation:

Metabolic Disorders

Mitochondrial Disease

Multiple Sclerosis  (Sp)

Muscular Dystrophy

Myasthenia Gravis

Myelin Diseases

Myeloma  (Sp)

Myoclonus

Myotubular Myopathy



N-O

Nager & Miller Syndrome

Neurofibromatosis  (Sp)

Neurologic Movement Disorders

Neutropenia

Nevus, Congenital  (Sp)

Niemann-Pick Disease

Noonan Syndrome

Norrie Disease

Nutrition, Oley Foundation  (Sp)

Obsessive-Compulsive Disorder

Opitz Syndrome

Opsoclonus-Myoclonus (Sp)

Osteogensis Imperfecta

Ostomy

Oxalosis & Hyperoxaluria



P-R

Pain, Chronic

Pallister-Hall Foundation

Pallister-Killian Mosaic Syndrome  (Sp)

Peutz-Jeghers Syndrome

Pituitary Disorders

Phenylketonuria (PKU)

Poison Control  (Sp)    (800) 222-1222 

Porphyra

Prader-Willi Syndrome

Prematurity

Progeria

Prune Belly Syndrome (See Eagle Barrett Syndrome)

Pseudoxanthoma Elasticum

Psoriasis

Purine Disorders

Purpura, Idiopathic Thrombocytopenia (ITP)

Rasmussen Syndrome

Respiratory Papillomatosis, Recurrent

Retinitis Pigmentosa

Retinoblastoma

Rett's Syndrome (Sp)

Reye's Syndrome

Rubinstein-Taybi Syndrome

Russell-Silver Syndrome 



S-T

Scleroderma

Septo-optic Dysplasia

Sibling Support

Shwachman Diamond Syndrome

Sickle Cell Disease

Smith-Mageni's Syndrome

Sotos Syndrome  (Sp)

Speech - Language

Spina Bifida  (Sp)

Spinal Cord Injury

Spinal Muscular Atrophy  (Sp)

Stickler Syndrome  (Sp)

Sturge-Weber Syndrome

Sudden Infant Death Syndrome (SIDS)  (Sp)

Tay-Sachs and Allied Diseases

Thalassemia (See Anemia, Cooley's )

Thrombocytopenia Absent Radius Syndrome

Tourette Syndrome

Treacher Collins Syndrome

Tremor, International Foundation

Trisomy 18, 13 & Related Disorde r

Triplets

Tuberous Sclerosis  (Sp)

Turner Syndrome

Twin to Twin Transfusion  (Sp)

Twins



U-Z

Urea Cycle Disorders

Usher Syndrome

VATER Association

Velo-Cardio-Facial Syndrome (Sp)

Vestibular Disorders  (Sp)

Vitiligo Syndrome

Williams Syndrome



Back to County Sacramento Local Directory FAQ.

Back to Placer County Local Directory FAQ.

Back to Yolo County Local Directory FAQ.

Back to El Dorado County Local Directory FAQ.

Back to Nevada County Local Directory FAQ.

Back to Alpine County Local Directory FAQ.
While every effort has been made to ensure accuracy and completeness, please call WarmLine Family Resource Center (WLFRC) at 916-922-9276 or 800-660-7995 with any information that will help make the next edition of this directory even better. Also, please note that numbers are listed under the county name; there is an additional listing for regional numbers whenever possible. 

Inclusion of a program or resource does not imply endorsement or recommendation by WarmLine.
2025 Hurley Way, Suite 100, Sacramento, CA  95825 : tel: 916-922-9276 or (800)-660-7995 fax: 916-922-9341
6960 Destiny Dr., Suite 106, Rocklin, CA  95677  tel: 916-632-2100  fax: 916-632-2103
907 3rd Street, Davis, CA  tel: 530-759-1127
Copyright ©2000 WarmLine Family Resource Center. 
The WarmLine is a public benefit, 501(c)(3) nonprofit organization